This blog started out as a chronicle of my son's fight with neuroblastoma cancer. Fortunately he has been doing so well that there has been less and less to chronicle regarding this disease. I have decided to expand this blog such that it will cover all of my family. Don't worry though, the information passed will still be filtered by my rather large, impressive, and completely insane brain. So grab some pancakes, and buckle up.

Friday, May 20, 2011

5-20-11

I have been in that fuzzy brain thing that happens when I get really stressed out.  With each day I am more and more stressed out about the upcoming surgery.  It is strange that the last time that I was really stressed out was on 2/11 (first day of Chemo #1).  Since then, we have been in the program, and Cole has been doing great.

I guess I have to go back to last Friday to get you caught up.  The fundraiser dinner and auction was amazing.  I must give a special thanks to the Friends Helping Friends Committee, Karin Cunningham, everyone who came, and everyone who donated items for the auction.  We had a great turnout, and it was a lot of fun.

I was worried about Cole going into the thing because he was coming off that crappy Chemo #5, and he had not really been feeling all that great.  To my utter amazement, he not only stayed longer than an hour, he actually stayed to the end.  When Elisa took Logan home to go to bed, Cole hung around with me to help finish up.  I tell you, the kid is a rock star.

The weekend was good.  On Saturday we went down to Grandma and Grandpa Rinde’s house to celebrate Logan’s birthday.  Kathy (of Kathy’s Kreative Kakes, who also donated a cake and gift certificate to the auction) made an awesome pirate cake for him (that he is still eating), and we had a very nice time.  Auntie Julia came down with us, and we learned all about laser tag and the correlation between laser tag and Canadian super models.

Monday and Tuesday were pretty normal.  On Wednesday Cole had his CT scan, and then I had to take him to the clinic for a transfusion of red blood and platelets.  That was a fun 5 hours at the clinic.  Yesterday we were back at the clinic this morning for a bone marrow aspiration (which is a fancy way to say that they stuck a huge needle in his hips and pulled out some marrow…fortunately he was asleep).  We had an appointment with the surgeon later in the afternoon so Cole and I decided to go to Valley Fair Mall to kill some time. 

The reason that Cole wanted to go to this mall was that it has both a Weztels Pretzlez (2 actually) and a CPK.  So we went and got a pretzel and then took said pretzel to CPK to eat it along with our cheese pizza and then followed that with a butter cake a la mode (which is French for 1300 calories).  Dr. Taggart should be happy that Cole definitely made his calorie count today.

The meeting with the surgeon was good, but also a little crappy.  I am not really ready to talk about the ins and outs of the upcoming surgery because I am still too stressed out about it.  I do ask; however, that you keep him in your thoughts, prayers, meditations, animal sacrifices, etc.

For now; however, please raise your glasses and toast Cole, lead guitarist for the mega band “She Totally Nailed Me With Her Snot.”

2 comments:

  1. Hi Jim,

    My name is Jason Haddix, i met Julia at a pre-wedding event this weekend. She very briefly mentioned Cole and her Facebook page led me here. I have two kids of my own who are my world, i hope the small donation helps in some way. Stay strong and take care.

    -Jason

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  2. Best of luck tomorrow. My thoughts and prayers are with Cole and your family!

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